Haemophilia team

Welcome to The Royal London Haemophilia Centre

We are dedicated to providing comprehensive care and support for individuals with bleeding disorders.

We take care of children and adults with Haemophilia, Von Willebrand’s disease, Platelet disorders and other rare acquired and inherited coagulation disorders.

Why choose us

About us

Our commitment to excellence in haematology care is rooted in a tradition of experience, innovation and compassion. We offer a wide range of services for adults and children.

Multidisciplinary Care

Collaborating closely with other specialists, we ensure that patients receive comprehensive care addressing their unique medical and psychosocial needs. We have a team of haematologists, highly trained nurses and physiotherapist, and specialised biomedical scientists.

  • We provide adult and paediatric consultant-led, nurse-led and physiotherapy-led clinics on a weekly basis.
  • We provide access to psychology counselling support, workshops and peer support groups specialised in the care of patients with bleeding disorders.
  • Our joint clinics with obstetrics and gynaecology provide care for girls and women with bleeding disorders at different stages of their lives.
  • Our links with The Royal London Dental hospital allow patients with severe bleeding disorder to access specialised dental care if required.
  • We have close ties with orthopaedics, hepatology, infectious diseases, dental, obstetrics and gynaecology.

Personalised Treatment Plans

We develop tailored treatment plans, which may include clotting factor replacement therapy, for each patient to ensure the best possible care. Our dedicate operations manager, admin team and homecare pharmacist, ensure that our patients receive their treatments at home.

Education and Support

We provide patient and family education on managing their condition, including how to recognise and manage bleeding episodes.

You can find out more about our team on our app: My Haemophilia Centre, available on the Apple store and Google play store.

Information for clinicians

When to refer a patient with easy bruising or bleeding

General Practitioners (GPs) play a vital role in identifying patients who may have bleeding disorders, especially those who present with symptoms like easy bruising. If you encounter a patient with unexplained or frequent bruising or bleeding, it is essential to consider the possibility of an underlying bleeding disorder, either inherited or acquired.

A combination of the following key indicators may prompt a referral to The Royal London Haemophilia Centre:

  • Recurrent and excessive bruising starting at a young age
  • Protracted bleeding after minor injuries
  • Excessive bleeding after surgery
  • Family history
  • Unexplained bleeding

What tests should I perform in primary care?

If you suspect your patient may have a bleeding disorder, please carry out the following blood tests: full blood count, clotting screen (PT and APTT), fibrinogen levels, liver function tests and iron studies. 

Please also carry out an ISTH Bleeding assessment tool which can be found on the Practical Haemostasis website. If your patient has an abnormal score and/or abnormal blood test results, please send a referral to us through the “Advice and Guidance portal”. If you are unsure whether to refer a patient or have any questions about referring a patient to our centre, please do not hesitate to get in touch with us through Advice and Guidance.

Regular prescriptions in patients with bleeding disorders

We advise all patients with bleeding disorders to take Tranexamic acid if they have bleeding symptoms and would be grateful if this is on their repeat prescription. The dose is 1gr TDS for adults. They should not take it in case of haematuria.

Contact the team

Contact the team

Contact the team

We want to hear from you

By Email: bhnt.haemophiliacentre@nhs.net
By Telephone: 020 3594 1869 (Mon-Fri 09:00-17:00)
Out of hours emergency: 020 7377 7000, ask for on-call Royal London Haematology Registrar

When to email:

  • To request a Travel Letter (please see travel letter advice)
  • To request a non-urgent call back, aimed to be returned within (2/3) working days
  • To request routine blood tests
  • To amend an appointment
  • To request collection of treatment, or to discuss home delivery
  • To arrange or rearrange a routine appointment with the Nursing or Physiotherapy team
  • To discuss upcoming surgery or dental treatments
  • To request a new bleeding disorders card

When to call:

  • If you have received a voicemail, requesting you call the Haemophilia Centre
  • If your query is urgent, requiring same day resolution

Please be aware, our Clinical team are often managing high and unpredictable workloads, requests made for contact may be rescheduled at short notice.