Other ways to get involved with research
Whether you are a patient, carer or simply a member of the east London community, we want you to be involved in our research so that we can make sure we are meeting the needs of our local community.
There are many ways you can help us with our research, from telling us if you don’t understand a question (you’d be surprised how helpful this is!) to making sure people are approached in the right way. You might be asked to help us make sure the research is reported in the right way or to join an advisory group. Whatever your role in helping with our research, you will be at the frontier of modern medicine helping us improve health both locally and across the world.
For more information on how to get involved, please see our Introduction to Public Involvement in Healthcare Research
Spotlight on women’s health research
We are more than an NHS trust that provides care to more than 2.5m patients each year. Together with Queen Mary University of London (QMUL), we are also one of the UK’s largest teaching and research active trusts. We encourage and promote active involvement of patients and the public in healthcare research, across a wide range of clinical specialties.
We have a strong focus on patient and public involvement and engagement (PPIE) because we have seen first-hand the positive impacts public contributors bring to our research. Whether it’s through informing our research topics and practice, reviewing our study documents or by disseminating study outcomes or results, every day, public contributors work alongside clinical and academic researchers, ensuring our research is truly collaborative and reflective of the healthcare needs of the local population, and further afield. Many public contributors have gone on to pursue further opportunities within clinical research, helping to shape healthcare delivery and improve patient experience and outcomes.
Women's Health Research Unit
As host of the Barts Research Centre for Women’s Health (BARC), the Women’s Health Research Unit has been improving women’s health in east London and beyond since its inception. Now led by Stamatina Iliodromiti, this film captures the groups’ inspiring work and exhibits the importance of PPIE in clinical research.
Katie’s Team is a community of people working to enhance public, patient and carer involvement in research related to women's health, reproductive health, pregnancy and childbirth. The group is made up of a diverse mix of people of various ages, sexes, backgrounds and ethnicities who are experienced in public involvement and advocacy at local, national and international level. The group is an integral part of women’s health research at Barts Health Trust and Queen Mary, University of London (QMUL). Meet three women who have followed different paths into research, each with a shared vision and enthusiasm for improving research around women’s health:
- Ngawai Moss, Katie's Team [pdf] 754KB
- Farzana Khanom profile, Katie's Team [pdf] 483KB
- Doris Lanz profile, Katie's Team [pdf] 523KB
"We need people to be involved in research not only as participants but as part of research teams to help prioritise what research questions matter to us and then shape it in a constructive and meaningful way. Through Katie’s Team we have built a small community with skills and experience but we always need new members with fresh perspectives and a broad range of experiences" – Ngawai Moss, Founding Member of Katie’s Team.
Find out more
- Katie's Team studies and co-publications [pdf] 755KB
- Katie's Team annual review 20/21 [pdf] 2MB
- Find out more by emailing the team and subscribing to the newsletter from their website
Current opportunities to get involved
Developing a video on hysteroscopy
Have you ever had an outpatient hysteroscopy? Would you like to help Dr Liza Ball and colleagues with this project?
“We (2 female doctors and 2 female researchers) are intending to make an animation video on awake/outpatient hysteroscopy with and by women who already had this procedure and are happy to use their experience to educate others (no need to appear on screen). This will be done in zoom sessions.“
If you are interested, please contact Kerrianne O’Rourke, Patient and Public Involvement Manager or phone: 020 7772 6492
PPI opportunity for those who have experienced an ICU stay
A research team at the William Harvey Research Institute (Queen Mary University) is working to determine the best outcome measures for nutritional clinical trials aiming to reduce loss of function, mobility and quality of life in patients surviving an intensive care unit stay (ICU).
This work presents a Public and Patient Involvement (PPI) opportunity where the team are looking for four individuals who have previously been a patient in an intensive care unit (ICU) OR who have been a care giver to someone who has been. You would join a panel of patients, care givers, doctors, nurses and researchers who will give their views on different measurements to use, enabling agreement on the best options to be reached. Former ICU patients and care givers have a really important role in this as they have been through or witnessed the recovery process and hence can provide a unique view.
You would be asked to read about various options for assessing someone’s function/mobility/quality of life during their recovery following an ICU stay, and then to score these indicating which you think are the most suitable and relevant, based on your experience.
Time commitment: 1-2 hours every 3-4 weeks during the three month period
Payment for involvement – a total of £75 available at the end of the 3 month period
Patient Research Champions
We are looking for patients, service users, carers and members of the public who are enthusiastic about health research and are willing to communicate that to other patients and the public as well as healthcare professionals.
Please note: in line with Trust policy, Patient Research Champions are currently not permitted to undertake volunteer activities on hospital premises however, there are many ways to get involved in research online or remotely. For more details, email the research engagement team, with ‘Patient Research Champion’ in the subject line.
Trauma patient groups
Our Trauma team The Centre for Trauma Sciences (C4TS) is always looking for former trauma patients, carers and members of the public who are able to contribute to their research into the best ways to treat traumatic injury. Find out more about The Centre for Trauma Sciences.
Pregnancy and childbirth research
The Katherine Twining Network researches topics around pregnancy and childbirth such as pre-term birth, pre-eclampsia, epilepsy in pregnancy, infertility, chronic pelvic pain, treatment options during caesarean section and nutrition in pregnancy. KT’s network always needs pregnant women and new mothers, as well as community advisers and other members of the community. For more information contact: email@example.com
If you'd like to find other opportunities to get involved in health and social care research, please visit the People in Research website.
Payment for public involvement for those in receipt of welfare benefits
The NIHR Payment-guidance-for-members-of-the-public-April-2021 document is for patients, carers and members of the public thinking about getting actively
involved in research and being offered expenses and/ or payment for your involvement, whilst in receipt of welfare benefits. Please note this is a complex area and it would be difficult for the guidance to cover everyone’s individual circumstances, so we strongly advise you to get expert advice about your own personal financial circumstances before accepting payment for involvement in research.