Other ways to get involved with research

Whether you are a patient, carer or simply a member of the east London community, we want you to be involved in our research so that we can make sure we are meeting the needs of our local community.

There are many ways you can help us with our research, from telling us if you don’t understand a question (you’d be surprised how helpful this is!) to making sure people are approached in the right way. You might be asked to help us make sure the research is reported in the right way or to join an advisory group. Whatever your role in helping with our research, you will be at the frontier of modern medicine helping us improve health both locally and across the world.

For more information on how to get involved, please see our Introduction to Public Involvement in Healthcare Research

Current opportunities to get involved

1) Opportunity for involvement in new Genomic Medicine Service Alliance

The NHS North Thames Genomic Medicine Service Alliance aims to build trust in genomics and provide clinical leadership to enable healthcare professionals to use genomics safely, effectively and efficiently to help improve lives. It is looking for patients, carers and members of the public to join a new advisory panel. The panel will review patient- and public-facing communications, and be involved in pathway development of genomic services in hospitals. 

We are interested in hearing from people with lived experience of undergoing genetic testing – either as a patient, carer or family member – within the last three years. We would also welcome applications from members of the public without experience of genetic testing but with an interest in improvements in the NHS through whole genome sequencing and genetic testing.

You will either live in or have received care in the North Thames region (which covers west, north, and east London and parts of Essex and Hertfordshire) or have a connection with the area. We are particularly keen to hear from people from marginalised communities, and people from Black and minority ethnic backgrounds.

To find out more information please visit the UCLPartners website

 

2) The NHS North Thames Genomic Medicine Service Alliance is also looking for a Chair for a patient, public and carer advisory panel for the new NHS North Thames Genomic Medicine Service Alliance (as listed above). To find out more information please visit the UCLPartners website

 

3) Developing a video on hysteroscopy

Have you ever had an outpatient hysteroscopy? Would you like to help Dr Liza Ball and colleagues with this project?

“We (2 female doctors and 2 female researchers) are intending to make an animation video on awake/outpatient hysteroscopy with and by women who already had this procedure and are happy to use their experience to educate others (no need to appear on screen). This will be done in zoom sessions.“

If you are interested, please contact Kerrianne O’Rourke, Patient and Public Involvement Manager or phone: 020 7772 6492

 

4) PPI opportunity for those who have experienced an ICU stay 

A research team at the William Harvey Research Institute (Queen Mary University) is working to determine the best outcome measures for nutritional clinical trials aiming to reduce loss of function, mobility and quality of life in patients surviving an intensive care unit stay (ICU).

This work presents a Public and Patient Involvement (PPI) opportunity where the team are looking for four individuals who have previously been a patient in an intensive care unit (ICU) OR who have been a care giver to someone who has been.  You would join a panel of patients, care givers, doctors, nurses and researchers who will give their views on different measurements to use, enabling agreement on the best options to be reached. Former ICU patients and care givers have a really important role in this as they have been through or witnessed the recovery process and hence can provide a unique view. 

You would be asked to read about various options for assessing someone’s function/mobility/quality of life during their recovery following an ICU stay, and then to score these indicating which you think are the most suitable and relevant, based on your experience.

Time commitment: 1-2 hours every 3-4 weeks during the three month period

Payment for involvement – a total of £75 available at the end of the 3 month period

Email Angela McNelly to find out more

 

5) Patient Research Champions

Do you have an interest in research and some free time to volunteer?

We have recently launched our Patient Research Champion role at Barts Health, where we are looking for patients/members of the public/service users/carers who are enthusiastic about health research and are willing to communicate that to other patients and public as well as healthcare professionals.

There is a range of ways that you can help across our five hospitals. Find out how to apply to be a Patient Research Champion.

 

6) A&E/Trauma patient groups

Our Accident and Emergency department have two patient groups that are always looking for new members to join.

1) Our A&E research team are looking for members of the public to join their Patient and Public Group. They meet quarterly to discuss current research and identify ways in which research can be effectively delivered in a busy A&E department. The team also ask members to look at proposed research and feedback any practical concerns or ideas they have. Find out how you can get involved with our A&E research team

2) Our Trauma team The Centre for Trauma Sciences (C4TS) is always looking for former trauma patients, carers and members of the public who are able to contribute to their research into the best ways to treat traumatic injury. Find out more about The Centre for Trauma Sciences

 

7) Pregnancy and childbirth research

The Katherine Twining Network researches topics around pregnancy and childbirth such as pre-term birth, pre-eclampsia, epilepsy in pregnancy, infertility, chronic pelvic pain, treatment options during caesarean section and nutrition in pregnancy. KT’s network always needs pregnant women and new mothers, as well as community advisers and other members of the community. For more information contact: ktnetwork@qmul.ac.uk

If you'd like to find other opportunities to get involved in health and social care research, please visit the People in Research website.

Payment for public involvement for those in receipt of welfare benefits

The INVOLVE information sheet for the public offers information about what to consider when offered paid involvement. This includes where to seek expert advice about how payment may affect your welfare benefits. It explains the context in which payment is offered and how public involvement in research is different from paid employment (especially important if you are receiving incapacity benefits) and also refers to sections of the Department of Work and Pensions staff guidance that addresses the regulations covering payment for ‘service user involvement’.