Haemoglobinopathy Coordinating Centre

The Haemoglobinopathy Coordinating Centre (HCC) is based at The Royal London Hospital and is the centre for thalassaemia and rare anaemia, and separately sickle cell anaemia.

The HCC for thalassaemia and rare anaemias covers of East London, Essex, southeast London and the southeast of England.

Caring for our patients

We want to ensure all patients with sickle cell, thalassemia and rare anaemias have access to the best care wherever they live.

The HCC is specialist treatment centre which helps to coordinate and improve access to services for patients. We do this by working closely with specialist haemoglobinopathy teams and local hospitals across the country.

We will feed into the UK national haemoglobinopathy panel , which is the national multidiscliplinary team made up of experts from the HCCs around the country. Additionally, part of our work is to ensure that all patients are registered with the National Haemoglobinopathy Registry as this will ensure that all patients receive good care wherever they live.

Our team

HCC Consultants

  • Dr Sarah Bennett - Sickle Cell (adults)
  • Dr Banu Kaya  - Sickle Cell (paediatrics
  • Dr Paul Telfer – Thalassaemia (adults and paediatrics)

HCC  Clinical Fellow

  • Dr Funmi Oyesanya

HCC Lead Nurse

  • Kim Newell                                                                           

HCC Delivery Manager

  • David Kafuko

Information for professionals

We want to work with other professionals to ensure that patients receive the right care. If you would like to refer a patient to our centre please read our criteria for guidance:

Multidisciplinary (MDT) meetings take place every month via weblink between 3 - 4:30pm and link will be sent out to clinicians before the meeting.

  • Sickle cell (adults): first Monday of each month
  • Sickle cell (paediatrics): fourth Monday of each month
  • Thalassemia adults and paediatrics: second Monday of each month

The neuro-radiology meeting takes place monthly and representative from  local centres within the network will be able to discuss head and spinal acns with our specialist neuro-radiologist.

Referrals for the MDT should be sent by a clinician via email by 5pm the Friday before the MDT. This will enable the consultants to review the referral/s. We will also be holding regular education sessions over the year and we will inform you of these once they are arranged.

Research

This is a very exciting time for sickle cell, thalassaemia and rare anaemias. There are a number of trials running across the network.

If you are a patient and would like to know more, please contact your specialist centre. If you are a clinician please contact us or attend one of our MDT sessions for further information.